Evaluation of the psychometric properties of the Episodic Disability Questionnaire (EDQ) among women living with HIV in the United Kingdom: A self-reported repeated measure study

Background: Disability is an increasingly common health outcome as women age with HIV and multimorbidity. The Episodic Disability Questionnaire (EDQ) measures the presence, severity, and episodic nature of disability across six domains. We evaluated EDQ properties among women living with HIV in the United Kingdom.
Methods: Participants in the Positive Transitions Through the Menopause (PRIME) study completed the EDQ at two timepoints (1 week apart), criterion measures (WHODAS 2.0, EQ-5D-5L, Work and Social Adjustment Scale), and a demographic questionnaire. We evaluated internal consistency (Cronbach alpha ≥0.7), test-retest reliability (ICC >0.7), measurement precision (Minimum Detectable Change (MDC) 95%), and construct validity (≥75% a priori hypotheses met). Disability prevalence was assessed using WHODAS 2.0 (moderate threshold) and Equality Act Disability Definition (severe threshold).
Results: Of 104 participants (median age 56 years, 65% Black ethnicity), 93 (89%) completed t..., , # Data from: Evaluation of the psychometric properties of the Episodic Disability Questionnaire (EDQ) among women living with HIV in the United Kingdom: A self-reported repeated measure study

Dataset DOI: [10.5061/dryad.tht76hfdd](https://doi.org/10.5061/dryad.tht76hfdd)

**Description of the data and file structure**

We aimed to assess the Episodic Disability Questionnaire (EDQ) for its ability to measure disability experienced by women living with HIV in the UK, specifically internal consistency, test-retest reliability, precision of measurement, and construct validity. We also aimed to measure disability prevalence and report disability profiles among women living with HIV.

**Files and variables**

**File: EDQ_Women_Time_Points_1_2.xlsx**

**Description:** Data from the Episodic Disability Questionnaire (EDQ) Women study, representing time point 1 (sheet 1) and time point 2 (sheet 2).  

**Missing Values: 9999**

***Sheet One***

* A: EDQ Physical domain Severity score [EDQ score..., Explicit consent from participants was received in writing to publish de-identified data in the public domain. Human subject data has been anonymised and prepared under legal and ethical guidelines. No direct identifiers are included in the data archived. Indirect identifiers have been removed from the data to protect anonymity. ,