Yale University Open Data Access Project

The Yale University Open Data Access (YODA) Project at the Center for Outcomes Research and Evaluation advocates for the responsible sharing of clinical research data. The Project is committed to open science and data transparency, and supports research attempting to produce concrete benefits to patients, the medical community, and society as a whole. Through experience and input from the public and stakeholders, the YODA Project has iteratively developed a model to make data available to researchers in a sustainable way, in which data sharing becomes a part of the clinical research enterprise of the future. The mission of the YODA Project is to not only increase access to clinical research data, but to promote its use to generate new knowledge.

设于结局研究与评估中心（Center for Outcomes Research and Evaluation）的耶鲁大学开放数据获取（Yale University Open Data Access, YODA）项目，致力于推动临床研究数据的负责任共享。该项目秉持开放科学与数据透明的理念，支持旨在为患者、医学界乃至整个社会带来切实福祉的研究工作。通过汲取公众与利益相关方的经验与意见，YODA项目已迭代构建出一套可持续向研究人员开放数据的模式，使数据共享成为未来临床研究事业的组成部分。YODA项目的使命不仅在于提升临床研究数据的可获取性，更在于推动其应用以催生新知识的产生。

搜集汇总

背景与挑战

背景概述

耶鲁大学开放数据获取（YODA）项目致力于推动临床研究数据的负责任共享，以促进开放科学和透明度，支持对患者、医学界及社会产生实际效益的研究。该项目通过迭代开发的可持续模型，旨在增加临床研究数据的可及性，并鼓励利用这些数据生成新知识。