Interdisciplinary National Study Investigating Genetics and Health Testing at Work (INSIGHT@Work): Modified Delphi Process, United States, 2020-2025

This research was supported by a grant from the National Human Genome Research Institute of the National Institutes of Health (R01HG010679). This project was conducted as part of the multi-aim R01 and led by Charles Lee and J. Scott Roberts. The project explores stakeholders' perspectives on key characteristics for implementation of workplace genetic testing (wGT).
The project had three specific aims and a supplementary aim:

Aim 1: Examine employers' perspectives through a landscape analysis to ascertain the prevalence and distribution of wGT among US companies
Aim 2: Investigate employees' views and perceptions of the benefits, risks, and limitations of wGT through (a) a national survey of working adults and (b) a survey of individuals working at a large US healthcare system who were offered wGT by their employer
Aim 3: Conduct a modified Delphi process with multiple surveys and a deliberative workshop among key stakeholders and distill the finding of Aims 1 and 2 to inform a normative assessment of wGT.
Supplement: Examine genetic counselors' perspectives on and experiences with wGT using semi-structured interviews and a national survey

This study, led by Co-Investigators Greg Feero and Anya E.R. Prince, examined Aim 3.