Well-being of Adults with Cerebral Palsy 2008-2010

The dataset contains information on Finnish adults with cerebral palsy, collected from different sources during 2008-2010, for the project "Well-being and rehabilitation during the life-cycle of adults with CP". The project was conducted by the Finnish Association of People with Physical Disabilities (FPD). There were four panel discussions with 10 participants. The participants were adults with CP of differing ages, gender and economic activity. Panel discussions covered the participants' life situations, managing everyday life, services provided for people with CP, disability benefits, rehabilitation, study opportunities, employment, interpersonal relations, physical ability, attitudes of others towards people with CP, and the impact of ageing. The data contain transcriptions of the panel discussions, all other material related to the panel discussions (plans, programmes, assignments given to the participants) as well as diaries written by the participants and e-mail discussions between them. Another data source was a postal survey containing open-ended questions on rehabilitation services, physical ability, methods of maintaining physical ability, dreams, future plans and fears. There were 54 respondents. The dataset is only available in Finnish.

本数据集收录了芬兰成年脑瘫患者的信息，该信息自2008年至2010年期间由多个来源收集，旨在支持“脑瘫成年人生涯中的福祉与康复”项目。该项目由芬兰物理残疾人协会（Finnish Association of People with Physical Disabilities，简称FPD）组织实施。研究过程中，共组织了四次包含10名参与者的圆桌讨论。参与者涵盖了不同年龄、性别和经济活动状态的成年脑瘫患者。圆桌讨论内容涉及参与者的生活状况、日常生活的管理、针对脑瘫患者提供的服务、残疾福利、康复治疗、学习机会、就业、人际关系、身体能力、社会对脑瘫患者的态度以及老龄化带来的影响。数据中包含了圆桌讨论的转录记录，以及其他与圆桌讨论相关的所有材料（包括计划、项目、分配给参与者的任务）以及参与者的日记和电子邮件讨论。另一个数据来源是一份包含开放式问题关于康复服务、身体能力、维持身体能力的方法、梦想、未来规划及恐惧的邮寄调查，共有54位受访者参与。该数据集仅提供芬兰语版本。