Health Information National Trends Survey-SEER (HINTS-SEER)

HINTS-SEER is a cross-sectional survey that sampled cancer survivors from three different SEER cancer registries. Sampling frames of survivors from each registry were stratified by time since diagnosis and race/ethnicity, with non-malignant tumors and non-melanoma skin cancers excluded. Respondents who consented completed a self-administered questionnaire sent through the mail and resulted in a total sample of 1,234 respondents. The goal of HINTS-SEER was to better understand the communication needs and practices, information preferences, risk behaviors and cancer knowledge of cancer survivors using a modified version of the Health Information National Trends Survey (HINTS) specifically designed for cancers survivors. Demographic information on the survivors showed that over 60% of the sample was 10 or more years since diagnosis with the most common cancers being male reproductive (24.6%), female breast (23%) and melanoma (9.6%) and gastrointestinal (8.6%). De-identified data is available in SAS, SPSS, and STATA formats, as part of a data package that also includes a history document, methodology report, data analysis recommendations, and a codebook. ]]>
To be included in HINTS-SEER, a respondent had to meet these inclusion criteria: 1) Cancer survivor with vital status of being alive; 2) Had to be an invasive cancer; 3) Must be 18 or older; 4) Last contact with their respective registry was no earlier than January 1, 2016; 5) Date of diagnosis prior to 2018 based on certified data; 6) If only one cancer, diagnosis must be something other than non-melanoma skin cancer. ]]>