Additional file 1 of Towards FAIRification of sensitive and fragmented rare disease patient data: challenges and solutions in European reference network registries

Name: Additional file 1 of Towards FAIRification of sensitive and fragmented rare disease patient data: challenges and solutions in European reference network registries
Creator: Abaza, Haitham; Benis, Nirupama; Zhang, Shuxin; Roos, Marco; Bernabé, César H.; ’t Hoen, Peter A. C.; van der Velde, K. Joeri; Swertz, Morris A.; Jacobsen, Annika; Schaefer, Franz; Cornet, Ronald; Cámara, Alberto; Wilkinson, Mark D.; Le Cornec, Clémence M. A.; dos Santos Vieira, Bruna
Published: 2023-04-13 00:00:00
License: 暂无描述

Figshare2023-04-13 更新2026-04-08 收录

下载链接：

https://springernature.figshare.com/articles/dataset/Additional_file_1_of_Towards_FAIRification_of_sensitive_and_fragmented_rare_disease_patient_data_challenges_and_solutions_in_European_reference_network_registries/22609630/1

下载链接

链接失效反馈

官方服务：

资源简介：

Additional file 1.. Template of implementation document.

提供机构：

Abaza, Haitham; Benis, Nirupama; Zhang, Shuxin; Roos, Marco; Bernabé, César H.; ’t Hoen, Peter A. C.; van der Velde, K. Joeri; Swertz, Morris A.; Jacobsen, Annika; Schaefer, Franz; Cornet, Ronald; Cámara, Alberto; Wilkinson, Mark D.; Le Cornec, Clémence M. A.; dos Santos Vieira, Bruna

创建时间：

2023-04-13