Survey from Family Members and Caregivers of Autism Spectrum Disorder (ASD) Patients

[1] Purpose:
This dataset contains survey responses from family members and caregivers of children diagnosed with autism
spectrum disorder (ASD). The survey was designed to understand caregivers' experiences with healthcare providers
in managing the medical, emotional, and holistic needs of patients with ASD. It aims to identify areas where care is
lacking or could be improved, focusing on communication, involvement in decision-making, mental health
support, and coordination between healthcare providers.

[2] Survey Scope:
The survey covers multiple aspects of healthcare and caregiving, including:
• Overall satisfaction with care: Caregivers' general feelings about the care their child receives.
• Communication: The effectiveness and frequency of communication between caregivers and healthcare providers.
• Emotional and medical needs: The extent to which healthcare providers address both the medical and emotional
needs of children with ASD.
• Sensory sensitivities: How well healthcare providers consider sensory sensitivities during care.
• Decision-making: The level of involvement caregivers has in care planning and decision-making.
• Care coordination: How well healthcare providers coordinate care across various specialists and services.
• Mental health and sleep health: How effectively mental health and sleep issues are managed.
• Support tools: The use of communication tools (e.g., visual schedules, apps, sign language) to aid in care.

[3] Data Type:
This dataset contains both qualitative and quantitative responses to the following areas:
• Timestamp: The date and time each response was submitted.
• Respondent Number: An anonymized identifier for each survey respondent.
• Survey Responses: Open-ended responses to questions about satisfaction, communication, emotional support,
decision-making, and care coordination. Caregivers are asked to reflect on their interactions with healthcare
providers across different aspects of care.

[4] Ethics and Confidentiality:
The dataset ensures respondent anonymity. No personally identifiable information is collected, and all responses
are anonymized for confidentiality. Participation is voluntary, and consent was obtained from all caregivers
involved. Responses will be used solely for research and analysis purposes to improve care for patients with ASD.

[5] Data Access:
The dataset is available for academic and research purposes. It may be shared with other researchers or
institutions focusing on improving healthcare services for patients with ASD.