Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
ASCQ-MeSM (Adult Sickle Cell Quality of Life Measurement Information System) is a patient-reported outcome measurement system that evaluates and monitors the physical, mental, and social well-being of
This dataset contains quality of life surveillance results for patients with cutaneous leishmaniasis, Brazil, focusing in a comparative analysis of the EQ-5D-3L and CLIQ questionnaires.
Background: Frailty is common after stroke and linked to poor outcomes, but many measures are clinician-rated, time-consuming, and not suited to patient-reported data. To address these issues, we deve
