five

Supplementary files for 'A new quality of life questionnaire for use in Duchenne muscular dystrophy: the DMD-QoL'

收藏
orda.shef.ac.uk2023-05-30 更新2025-03-25 收录
下载链接:
https://orda.shef.ac.uk/articles/dataset/Supplementary_files_for_A_new_quality_of_life_questionnaire_for_use_in_Duchenne_muscular_dystrophy_the_DMD-QoL_/12942998/2
下载链接
链接失效反馈
官方服务:
资源简介:
Supplementary files to support a manuscript on the development of a new quality of life questionnaire in DMD: the DMD-QoL. The research is part of the Producing a preference-based quality of life measure for people with Duchenne muscular dystrophy project and is funded as part of project HERCULES led by Duchenne UK.A protocol for the work is available online: Powell et al. (2019), http://dx.doi.org/10.1136/bmjopen-2018-023685The research received ethical approval from the UK National Health Service (NHS REC reference: 18/SW/0055).

补充文件以支持一篇关于发展新的生活质量问卷(DMD-QoL)的研究论文:该研究为杜氏肌肉萎缩症(Duchenne muscular dystrophy)患者量身定制的生活质量测量方法项目的一部分,并作为杜氏肌肉萎缩症英国(Duchenne UK)领导的项目HERCULES的子项目获得资助。相关研究方案已在线发布:Powell等(2019年),http://dx.doi.org/10.1136/bmjopen-2018-023685。研究已获得英国国家卫生服务(NHS)伦理审查委员会的批准(NHS REC参考号:18/SW/0055)。
提供机构:
orda.shef.ac.uk
二维码
社区交流群
二维码
科研交流群
商业服务