Data for: Data Diaries: Self-Reported Chronicles on Online Health Platforms and the Challenges for Technology Assessment

<h3>Project Overview </h3>
<p>This project explores the ethical, social, and economic implications of online health
platforms that promote participatory models of data collection and utilization. These platforms,
often heralded for democratizing healthcare, also raise significant concerns about privacy, data
commodification, and exploitation. By using qualitative interviews and reviewing the literature,
this project examined how such platforms influence healthcare dynamics. While these
platforms fostered user empowerment, they simultaneously created environments where new
forms of surveillance may emerge. This project emphasized the importance of addressing these
concerns through rigorous technology assessment (TA), particularly in regions governed by
strict data protection regulations such as the General Data Protection Regulation (GDPR) in
Europe. By examining the socio-ethical challenges these platforms introduce, the study
suggests pathways for ensuring that the benefits of participatory platforms are distributed
equitably and ethically.</p>