OGSA-PROMs-2023, a collection of musculoskeletal disorders' public open datasets of patient-reported outcome measures (PROMs)

The datasets in this archive are three patient-reported outcome measure (PROM) musculoskeletal disorders' registry datasets, derived from the knee, hip and spine pathology registries developed and managed since 2018 at the IRCCS Ospedale Galeazzi--Sant'Ambrogio (OGSA) hospital, located in Milan (Italy, EU), one of the major orthopedics research hospitals within the European Union.

The three datasets describe around 15 thousand surgical events, corresponding to more than 13 thousand unique patients whose health and quality of life has been monitored across a period of more than years, starting from the preoperatory stage, through a variety of general and pathology-specific PROM' questionnaires.

Each record in the datasets represent a surgical event, and a single patient can be associated with multiple surgical events: the complete surgical history of a patient can be reconstructed by matching on the uid column. The datasets contain three main different types of data, collected at different times during the patient surgical and rehabilitation journey and through different acquisition modalities:

Clinical and demographical data;

Surgical event data;

PROM data, including both individual PROM questionnaire items as well as calculated PROM scores.

PROM data are collected at pre-operatory time as well as at different follow-ups, namely 3, 6, 12, 24, 60 months after surgery. 

The data have been pseudo-anonymized by removing potentially identifying fields, including all text fields (except for the operator name, which has been hashed using SHAKE-128).