Cognisance

The Cognisance data set consists of a mix of quantitative and qualitative research. We collected data on experiences with post-diagnostic dementia support and we carried out an evaluation of a website and campaign: Forward with Dementia.

To investigate the experiences of post-diagnostic dementia support, surveys were distributed to people with dementia (N=23), informal caregivers (N=134) and health and social care providers (N=20). Additionally, qualitative research focussed on barriers and facilitators with post-diagnostic dementia support. The qualitative data used a mix of strategies (online focus groups, telephone, online, face-to-face and dyadic interviews). We included 6 people with dementia, 10 informal caregivers and 11 health and social care professionals.
To evaluate the website and campaign of Forward with dementia data on reach, effectiveness adoption and implementation was collected. A short evaluation questionnaire of the website yielded 23 responses. A short questionnaire on campaign events yielded 44 responses. A questionnaire on experience with Forward with dementia was completed by 14 informal caregivers. Qualitative data was collected with 2 people with dementia, 10 informal caregivers, 4 health and social care providers and 4 key stakeholders.