Care Home Stakeholder Perspectives on Data Sharing and Linkage: Search and Data Extraction

The data deposited relate to a rapid scoping review that I conducted under the Advanced Care Research Centre as part of my Individual Project in Ageing and Care. The following is a draft abstract for a pending publication of this review: "Since the COVID-19 pandemic highlighted inadequacies in the collection, access, and use of health and social care data across the United Kingdom (UK), the topics of ‘data sharing’ and ‘data linkage’ have gained greater importance. Yet, the sharing and linkage of social care data, especially that from care homes, remains underexplored. To address the limited understanding of care home stakeholders’ perspectives on data sharing and linkage, a rapid scoping review was conducted to map the extent and range of existing evidence on the topic and identify gaps in the literature. Searches were conducted in PubMed, EMBASE, CINAHL Plus, Scopus, Web of Science, and the Cochrane Database of Systematic Reviews to identify studies on stakeholders’ needs, views, and experiences of data sharing or linkage in the UK care home sector. After removing 322 duplicates, 543 studies were screened. The remaining 11 studies identified key barriers, facilitators, and opportunities to improve data sharing and linkage within the UK care home sector. The findings displayed that, while there are similarities between health and social care data sharing and linkage, further research is required to provide nuanced insights into the specific needs of the care home sector.