Replication Data for: HOPEVOL, appropriate hospice care in the Netherlands

The quantitative and qualitative datasets comprise data from the HOPEVOL study a national study of appropriate hospice care in the Netherlands.

This study contains multiple datasets
1) HOPEVOL1 and HOPEVOL2study: The raw data from two dataset were merged to one complete set containing data from 803 patients admitted to hospices in the Netherlands in 2017 and 2018. In total 266 variables were collected from all patients.
2) HOPEVOL1 en HOPEVOL2 report The datasets comprises data from 204 patients contributed to an indepth symptom management practices overview, containing information on practices of 14 symptoms and use of three PROMS in total 296 variables
3) A data dictionary of all data collected in HOPEVOL1 and HOPEVOL2 in Dutch
4) HOPEVOL_hospice_characteristics: comprises information of structure and process of care of 42 hospices in 149 variables.
5) Dignity_caregiver: qualitative data, transcriptions of focusgroups interviews with caregivers working in hospices in the Netherlands discussing dignity and dignity conserving care practices in daily hospice care.
6) Dignity_patient: qualitative data: transcriptions of of interviews with patients exploring the meaning of dignity and dignity conserving care form the patient perspective.
7) Dignity_patient_dignity_inventory; contains patient characteristics, PDI outcomes and USD4D outcomes of 99 patients admitted to hospices in the Netherlands in 2021.