Dementia Carers Instrument Development (DECIDE) - Qualitative interview data

This dataset contains qualitative interview transcripts, obtained from 41 of 42 semi-structured interviews with a purposively diverse sample of primary carers aged ≥16 years, supporting a partner or family member who had a diagnosis of dementia and living in the community. Participants included 28 females, and 14 males (aged 31-83). The sample included 22 carers who were husband or wife of the person with dementia, and 20 who were daughters, sons, daughter-in-laws or granddaughters. Specific diagnoses of the person with dementia included Alzheimer's disease, vascular dementia, or other. Open questions were used to explore carers’ experiences, thoughts, and feelings related to challenging and rewarding experiences and events. Socratic questioning was employed, through asking carers to reflect on why particular experiences of care made them feel or think as they did. In this way, we aimed to uncover underlying needs that were impacted upon by the carer experience and generate nuanced contextualized accounts of how caring impacted on carers’ lives.