RaDaR
收藏国家生物信息中心2025-10-11 更新2025-03-15 收录
下载链接：
https://grdr.ncats.nih.gov/index
下载链接
链接失效反馈官方服务：
资源简介：
RaDaR, formerly known as the Global Rare Diseases Registry Data Repository (GRDR) program, aims to define best practices for patient registries. RaDaR also strives to identify and adopt standards to support high-quality registries for rare diseases therapeutics development. To achieve these aims, RaDaR staff will:
Identify, develop and validate data standards, data collections and data sharing practices that can be used across the rare disease registry community;
Develop best practices for building high-quality registries able to support therapeutics development; and
Make these best practices and standards broadly available and easily accessible to the rare disease community.
提供机构：
National Center for Advancing Translational Sciences
创建时间：
2018-01-29
