Grief in Daily life Archive (Grief-ID Archive)

Grief is a natural response to the death of a loved one. Grief may vary between individuals and across time. When grief reactions are so intense that they disrupt daily functioning, a prolonged grief disorder (PGD) may apply. Most studies on PGD rely on cross-sectional survey data, which provide insights into between-person differences but are impossible to examine within person moment-to-moment changes in grief reactions. The Grief in Daily Life (Grief-ID) archive addresses this gap by providing harmonized datasets from ecological momentary assessment (EMA) projects. The use of EMA captures time- and context-dependent changes, disentangles between-person from within-person effects, reduces recall bias, and offers a more ecologically valid assessment of grief reactions. The archive complies with Findable, Accessible, Interoperable, Reusable (FAIR) research guiding principles and provides extensive metadata corresponding to each principle. Researchers are encouraged to reuse and contribute data to the Grief-ID archive, thereby furthering our understanding of grief in daily life.<p> Data Collection<p> Version 1.0 of the archive includes 315 participants and 22,050 EMA measurement points. On average, participants responded to 43.77 ESM notifications in total, with the median being 50, on a scale from 1 to 70, which reflects an overall compliance rate of 71%. Individuals aged 18 years and above were eligible to participate. People diagnosed with a psychotic disorder or those reporting suicidal ideation, assessed at baseline, were excluded from participation. The studies included in Version 1.0 consisted of three distinct phases of data collection. First, the initial baseline measures included questions assessing sociodemographic, loss characteristics, measures of psychopathology, and other measures. Second, the ESM phase was conducted using the Avicenna application (Avicenna Research, 2024). Participants rated the intensity of PGD symptoms and contextual factors five times a day, for a period of 14 days. Third, the final phase of the study was conducted following the ESM phase. In this phase, psychopathology symptoms were assessed in a manner consistent with that employed in phase one. Differences in recruitment strategies and inclusion criteria between the three different projects are outlined in supporting information. <p> Accessibility<p> To receive the data file, you are required to pre-register your study for the use of the Grief-ID Archive. More details can be found in the Data Access Protocol. Please complete the Data Access Protocol and send it to the designated points of contact listed in the data accessibility instructions. All metadata is openly available.<p> More Information<p> A detailed description of the archive, methodology, and datasets can be found in the accompanying data note: https://doi.org/10.13140/RG.2.2.12452.80004<p>哀伤是至亲离世后的自然反应。个体间的哀伤体验及随时间推移的表现均存在显著差异。当哀伤反应强烈至干扰日常社会功能时，可诊断为延长哀伤障碍（prolonged grief disorder, PGD）。现有多数针对延长哀伤障碍的研究依赖横断面调查数据，此类数据仅能揭示个体间的哀伤差异，却无法观测个体层面哀伤反应的逐时动态变化。日常哀伤（Grief in Daily Life, Grief-ID）数据集库正是为填补这一空白而构建，它整合了来自多项生态瞬时评估（ecological momentary assessment, EMA）项目的标准化数据集。生态瞬时评估技术能够捕捉哀伤反应随时间与情境的动态变化，区分个体间与个体内的效应差异，减少回忆偏差，并提供更具生态效度的哀伤反应评估方案。该数据集库遵循可发现、可访问、可互操作、可复用（Findable, Accessible, Interoperable, Reusable, FAIR）的科研数据管理准则，并为每项准则提供了详尽的元数据支撑。本数据集库欢迎研究人员复用数据并贡献新数据，以深化我们对日常哀伤体验的认知。 数据采集 V1.0版本的数据集库共纳入315名参与者，总计22050个生态瞬时评估测量点。参与者平均总计完成43.77次经验抽样法（Experience Sampling Method, ESM）提示的应答，应答中位数为50，应答范围为1至70次，整体依从率达71%。本研究纳入年满18周岁的个体作为研究对象；基线评估中被诊断为精神障碍或存在自杀意念的参与者将被排除。 V1.0版本的数据集包含三项独立的数据采集阶段：第一阶段为初始基线测量，内容涵盖社会人口学信息、丧亲特征、精神病理量表及其他相关评估指标。第二阶段为经验抽样法采集阶段，使用Avicenna应用程序（Avicenna Research, 2024）完成；参与者需每日五次对延长哀伤障碍症状强度及情境因素进行评分，持续时长为14天。第三阶段为终末评估阶段，于经验抽样法采集阶段结束后开展；该阶段采用与第一阶段一致的方式评估精神病理症状。三项独立研究在招募策略与纳入排除标准上的差异详见辅助材料。 数据可及性 如需获取数据集文件，研究者需预先注册使用Grief-ID数据集库的研究计划，详细说明可查阅《数据访问协议》。请完成《数据访问协议》并发送至数据可及性说明中列出的指定联络人。所有元数据均公开可获取。 更多信息 有关该数据集库、研究方法及数据集的详细说明，请参阅配套数据说明文档：https://doi.org/10.13140/RG.2.2.12452.80004