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Transparency of 157 patient and consumer groups’ websites.

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Figshare2015-12-02 更新2026-04-29 收录
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https://figshare.com/articles/dataset/_Transparency_of_157_patient_and_consumer_groups_8217_websites_/311512
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*organizations not included in other categories: e.g. growth hormone deficiency, psoriasis, inflammatory bowel disease, osteoporosis, prevention of blindness.**reference varies among organizations: some describe the activities funded in detail, others only mention them. Some report this information only in brochures of events or activities.°percentages refer to the organizations reporting funded activities. More than one answer was possible.The transparency of patient and consumer groups’ websites was assessed in terms of: disclosure of drug companies providing funds, amount of funds, activities funded; accessibility of sponsorship information; availability of a code of conduct about sponsorship; links to drug companies’ websites; presence of banner advertisings; clear separation of marketing content; availability of a financial report.Disclosure information are reported for all the groups and by disease of interest.
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2015-12-02
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