FSHD-registratie
收藏DataCite Commons2026-01-26 更新2026-05-04 收录
下载链接：
https://data.ru.nl/collections/di/dcmn/DAC_fshdreg_t0000191a_092
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资源简介：
This collection belongs to two published papers: 1) "The Dutch registry for facioscapulohumeral muscular dystrophy: Cohort profile and longitudinal patient reported outcomes" by J. Kools et al., published in Neuromuscular Disorders in 2023, and 2) "Living with facioscapulohumeral muscular dystrophy during the first two COVID-19 outbreaks: a repeated patient survey in the Netherlands" by J.C.W. Deenen et al., published in Acta Neurolica Belgica in 2024.
提供机构：
Radboud University
创建时间：
2024-11-14
