MIMIC_III_IPI - Discharge Summaries from MIMIC-III with Indirect Personal Identifiers Annotations

MIMIC_III_IPI - Discharge Summaries from Medical Information Mart for Intensive Care-III with Indirect Personal Identifiers Annotations

The discharge summaries we use for demonstrating our Indirect Personal Identifiers (IPI) schema are randomly sampled from the Medical Information Mart for Intensive Care (MIMIC-III) dataset. MIMIC-III comprises health-related data from over 40,000 patients who stayed in critical care units of the Beth Israel Deaconess Medical Center between 2001 and 2012. Among other types of data, such as patient demographics, the database also includes various types of textual data, such as diagnostic reports and discharge summaries. We chose discharge summaries for our study, since these are richer in information than other notes in MIMIC-III. Details:

Johnson, A., Pollard, T., & Mark, R. (2016). MIMIC-III Clinical Database (version 1.4). PhysioNet. https://doi.org/10.13026/C2XW26.

Johnson, A. E., Pollard, T. J., Shen, L., Lehman, L. W., Feng, M., Ghassemi, M., Moody, B., Szolovits, P., Celi, L. A., & Mark, R. G. (2016). MIMIC-III, a freely accessible critical care database. Scientific data, 3, 160035. https://doi.org/10.1038/sdata.2016.35

This is the Discharge Summaries from MIMIC-III with Indirect Personal Identifiers Annotations as an external source of the paper accepted at the PrivateNLP workshop at NAACL 2025, a preprint can be found in:

Baroud, I., Raithel, L., Möller, S., & Roller, R. (2025). Beyond De-Identification: A Structured Approach for Defining and Detecting Indirect Identifiers in Medical Texts. arXiv preprint arXiv:2502.13342.

This repository contains the annotations in a CSV file and the annotation guidelines document. Inspecting the exact annotation texts requires access to the MIMIC-III Clinical Database, see https://physionet.org/content/mimiciii/1.4/. Each row in the CSV file has an ID together with a list of the IPI annotated spans, each in the format {"start": ,"end": ,"label": }. The ID in the ipi_annotations.csv table corresponds to the same ROW_ID in the MIMIC-III NOTEEVENTS.csv table and can be used for merging the tables to inspect the original documents and reconstruct the annotations using the offsets. 

Please note that only authenticated users can request access to review and download the annotations and guidelines. If you encounter any issues, feel free to reach out to the contact person.