ELIXIR Luxembourg Data Sustainability Service

The ELIXIR Luxembourg Data Catalogue is a unique collection of project-level metadata from large research initiatives in a diverse range of fields, including clinical, molecular and observational studies. Its aim is to improve the findability of these projects following FAIR data principles. The ELIXIR Luxembourg Data Sustainability Service, hosted by the Luxembourg Centre for Systems Biomedicine (LCSB) at the University of Luxembourg, offers a unique model for research data management. This service provides support for data hosting, access provision and findability, actively supporting the long-term availability, documentation, and regulatory compliance of datasets, platforms, and projects. Sustainability governance is integrated in the process by assisting data providers in defining access models, setting up Data Access Committees (DACs), and ensuring adherence to GDPR and relevant national legal frameworks. ELIXIR Luxembourg's role is operational and administrative: it stores and redistributes data under instruction of data providers, manages Data Use Agreements (DUAs), and coordinates user access requests and reporting. Access to data can be either open access (i.e., data can be accessed without restrictions) or controlled access, for which review by the provider-led DAC and signing of Data Use Agreement are required.