Health-related quality of life in adults with classical infratentorial superficial siderosis

Dataset underpinning the study on health-related quality of life in adults with classical infratentorial superficial siderosis. The data were collected between April 2020 and July 2021 as part of an online survey, and using the two common health-related self-reported outcome measures on  health-related quality of life: HUI3 and EQ5D. The study findings are reported in:  
Health-Related Quality of Life in Adults With Classical Infratentorial Superficial Siderosis
A Cross-sectional Study
Natallia Kharytaniuk, Amir Ala Mazaheri, Menelaos Pavlou, David J. Werring, Doris-Eva Bamiou
 Neurology Nov 2022, 99 (19) e2201-e2211; DOI: 10.1212/WNL.0000000000201115

Available from: https://n.neurology.org/content/99/19/e2201

To ensure the dataset is anonymised, in view of rarity of the disease, certain data were collapsed into categorical variables.

本研究数据集支撑了对经典脑室旁表浅性铁质沉着症成年患者健康相关生活质量的研究。数据收集于2020年4月至2021年7月，作为在线调查的一部分，并采用了两种常见的健康相关自我报告结果指标：HUI3和EQ5D。研究发现的报告见如下：
《经典脑室旁表浅性铁质沉着症成年患者的健康相关生活质量
一项横断面研究
Natallia Kharytaniuk, Amir Ala Mazaheri, Menelaos Pavlou, David J. Werring, Doris-Eva Bamiou
神经学杂志2022年11月，99 (19) e2201-e2211；DOI: 10.1212/WNL.0000000000201115

数据集可通过以下链接获取：https://n.neurology.org/content/99/19/e2201
为确保数据集的匿名性，鉴于该疾病的罕见性，某些数据被合并为分类变量。