Data For: Qualitative Interviews to Engage End-Users to Adapt I CAN PIC to the CARE Tool Employing a User-Centered Approach

<h3>Project Overview</h3>
<p>People with cancer often experience financial toxicity on top of the burden of having a serious illness which negatively impacts their health and well-being across socioeconomic levels and insurance types. Those from socioeconomically marginalized groups are particularly affected. Financial toxicity is associated with diminished clinical outcomes, reduced quality of life, and persists for years. High-deductible plans, cost-sharing, and unexpected out-of-pocket costs contribute to the direct and indirect cost burden those diagnosed with cancer experience. Limited transparency about insurance and costs of care can prevent patients from preparing and can surprise them with high bills. Improving Cancer Patients’ Insurance Choices (I CAN PIC) was originally designed to facilitate insurance choice for those interested in private insurance. After Medicaid expansion in 2021 and older patients on Medicare requesting additional information and resources, this study aims to adapt I CAN PIC to the Cancer Affordability Resources (CARE) Tool. To adapt I CAN PIC, we explored end users’ perspectives when reviewing the web-based tool and participants discussed factors that may impact implementation.</p>

<p>The project is also referred to with the acronym ACCERT given its involvement with the Washington University Advancing Cancer Control Engaged Research through Transformative Solutions Center funded by the National Institutes of Health (NIH).</p>