Additional file 1 of A community-centric model for conference co-creation: the world conference on CDG for patients, families and professionals
收藏Figshare2024-10-24 更新2026-04-08 收录
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https://springernature.figshare.com/articles/dataset/Additional_file_1_of_A_community-centric_model_for_conference_co-creation_the_world_conference_on_CDG_for_patients_families_and_professionals/27289177
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资源简介：
Additional File 1: List of references of rare disease medical conferences. List of studies describing rare disease medical conferences and respective data extraction. Date extraction includes the following details: country, year of event, disease, organizers, type of event, usage as research platform, audience, the number of participants, the inclusion of patients as panelists, the topic, major goals and main conclusions.
提供机构：
Pascoal, Carlota; Videira, Paula A.; Granjo, Pedro; dos Reis Ferreira, Vanessa; Francisco, Rita; de Freitas, Claudia
创建时间：
2024-10-24
