遇见数据集

Mapping of the data set of the German National Registry of Rare Diseases (NARSE) to Core Data Sets of MII and ERDRI

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Zenodo2026-07-15 更新2026-08-01 收录
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Mapping between the data set of the German National Registry for Rare Diseases ("Nationales Register für Seltene Erkrankungen"; NARSE) to the data sets of the German Medical Informatics Initiative (MII) and European Rare Disease Registry Infrastructure (ERDRI). Data set used in "Strengthening Rare Disease Data Readiness: a semantic approach to cross-registry interoperability"

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Zenodo
创建时间:
2026-07-15
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