Data From the Development and Acceptability Testing of the Carers-ID Online Support Programme, 2021-2022

In order explore the experiences of family carers of people with profound and multiple learning disabilities and voluntary sector organisations during the COVID-19 pandemic, we conducted 38 focus groups – 6 voluntary sector and 32 carer (data includes 38 transcripts). There were a total of 24 participants in the voluntary sector focus groups and 126 in the carer focus groups. Participants were from Northern Ireland, Ireland, Scotland, England and Wales. Based on these findings and with the help of the co-design group, we developed the Carers-ID online support programme. To test the acceptability of the programme among family carers we conducted an online survey which was distributed to family carers. We received 70 responses to our survey (data includes SPSS data file), of which 10 participants conducted follow up interviews (data includes 10 transcripts).