Infant Health and Development Program, Phase IV Electronic Records, 2000-2016
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https://doi.org/10.7910/DVN/UFXW2X
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资源简介:
This dataset represents a group of paper records (a "series") within the Marie C. McCormick papers, 1956-2016 (inclusive), 1968-2009 (bulk), which can be accessed on-site at the Center for the History of Medicine at the Francis A. Countway Library of Medicine in Boston, Massachusetts. The series consists of research administrative and regulatory records, research data, publishing records, and correspondence, generated and compiled by Marie C. McCormick during her tenure as Principal Investigator for Phase IV of the Infant Health and Development Program. Phase IV of the program revisited low-birthweight subjects at 18 years of age (between 2001 and 2004), some of whom had participated in early childhood educational intervention as part of the study. Research during this phase addressed the health, social functioning, mental health, and mental ability of young adult subjects and their siblings; subjects’ family composition, environment, and socio-economic background; and the parenting philosophies and practices of parents or caregivers. More IHDP records may be found in the “Infant Health and Development Program, Phases I-III Records, 1984-2002” and “Infant Health and Development Program, Phase IV Paper Records, 1990-2009” datasets. More publishing records may be found in the “Writings and Publications, 1971-2013 dataverse”. Research administrative records include: Institutional Review Board (IRB) safety plans, confidentiality certificates, and consent forms drafted for various participant categories; site directors’ meeting minutes and agendas; financial and grant funding records; reports; presentations; and administrative correspondence. Research regulatory records consist of: survey instruments and interview schedules; codebooks; and protocols and methodologies. Research data include: coded and analyzed databases and datasets (SAS, SPSS, Microsoft Access, comma-separated value files, tab-delimited files, and spreadsheets); and summarized and analyzed data tables and graphs. Publishing records include manuscript drafts, bibliographies, and correspondence for publications related to IHDP research findings from multiple phases of the program. Correspondence consists of emails and attachments received by McCormick during Phase IV, concerning: research administration (such as research protocols, policies, IRB approval, and grant funding); publishing; and research data results. Email attachments include: manuscript drafts and publishing correspondence; grant funding records; IRB records; and SPSS dataset files. Topics in the subseries include: behavior; academic performance; physical health; nutrition and eating habits; peer and family relationships; household composition and environment; substance abuse and suicidal thoughts; criminal activity; safety and danger; and maternal parenting philosophy and involvement in child’s education and social activities, among other topics. Series also includes collected publications related to the focuses of IHDP research. Data and associated records are accessible onsite at the Center for the History of Medicine per the conditions governing access described below. Conditions Governing Access to Original Collection Materials: The series represented by this dataset includes longitudinal patient information that is restricted for 80 years from the most recently dated records in the “Infant Health and Development Program, Phase IV Paper Records, 1990-2009” series, personnel information that is restricted for 80 years from the date of record creation, and Harvard University and Children’s Hospital Boston institutional records that are restricted for 50 years from the date of record creation. Access to electronic records is also premised on the availability of a computer station, requisite software, and/or the ability of Public Services staff to review and/or print out records of interest in advance of an on-site visit. Researchers should contact Public Services for more information. The Marie C. McCormick papers were processed with grant funding from the Andrew W. Mellon Foundation, as awarded and administered by the Council on Library and Information Resources (CLIR) in 2016. View the Marie C. McCormick Papers finding aid for a full collection inventory of both paper and digital records, and for more information about accessing and using the collection.
创建时间:
2017-08-22



