Online survey data relating to heart rhythm abnormalities in men and boys with X-linked ichthyosis (XLI) and female carriers of XLI-associated genetic deletions

The data are archived in an Excel spreadsheet, with individual rows representing different participants, and columns representing participant responses to individual online survey questions (questions and response options are provided at the top of each column). Questions cover demographic variables, means of XLI diagnosis/carrier status, family history of cardiovascular issues, comorbid medical conditions, precipitants/nature/developmental course/severity of any self-reported heart arrhythmias and their treatments, and opinions relating to cardiac screening for individuals carrying XLI-associated genetic deletions.