Interviews with Disabled Young People with Life-limiting and Life-threatening Impairments, and Their Parents and Carers, 2017-2020

These semi-structured interviews were collated as part of an ESRC funded project Life, Death, Disability and the Human: Living Life to the Fullest More details can be found at https://livinglifetothefullest.org. The interviews were carried out with two groups (1) young disabled people with life limiting impairments (aged mid teens to early 30s) and (2) family members and parents of young disabled people. The interviews explored many themes including impairment, education, healthcare and community participation. Throughout the interviews a strong theme emerges: that young people have aspirations and ambitions though often face disabling structures in their lives.