2020 Citizen Science Event Book: #LongCovid

The Chinese Version "2020 年公民科學事件簿:#長新冠(#Long Covid) ": https://pansci.asia/archives/370282
The English full text : https://details-or-fragments.blogspot.com/2023/12/LCEventBook.html
Long Covid comes from a "patient-created term" in the spring of 2020. On October 6, 2021, the WHO announced its official definition. Although it used "post-COVID-19 condition", the Long Covid is still the most common term. This bottom-up grassroots movement of public participation in scientific concepts in online communities has reached the social conscience of the public and driven scientific development, and finally led to the establishment of relevant policies and scientific progress. This is what sociologists called "citizen science". 

How did it all begin?
Patient symptom stories: COVID-19 affects more than just the lungs
Long COVID Citizen Campaign: Responses from health services
The openness of online social media
The positive actions of these online community and the collective consensus reached are enough to convincingly prove to medical institutions, including the WHO, that Long Covid is a real disease despite the lack of traditional evidence-based medicine. A group of online citizens collectively wrote the first textbook on Long Covid in 2020. At this moment, we are witnessing the mass power of the online community, which not only promotes real changes in the real world, ensures recognition of medical care supply, but also stimulate a new scientific research stage.