Cancer Registration: National Cancer Patient Experience Survey Wave 2 by patient characteristics and route to diagnosis

The English Cancer Patient Experience Survey (CPES) is commissioned by NHS England and administered on their behalf by an external survey provider organisation (Quality Health). The survey provides insights into the care experienced by cancer patients across England who were treated as day cases or inpatients. Data from CPES has been linked to cancer registration records recorded by the National Cancer Registration and Analysis Service (the cancer registry in England). Individual responses to Wave 2 of CPES are recorded , alongside characteristics of the patient who has completed the survey.

Wave 2 of the National Cancer Patient Experience Survey is limited to patients discharged from cancer care between 01/09/2011 – 30/11/2011.

Data within the file:
--PATIENT_PSEUDO_ID (Project specific Pseudonymised Patient ID)
GENDER (coded Male, Female)
--QUINTILE2010 (Deprivation quintile [1-5], describing the Income Deprivation Domain where 1= least deprived and 5= most deprived)
--FINAL_ROUTE (One of eight Routes to Diagnosis- methodology for the assignment of each route is described in Elliss-Brookes L, McPhail S, Greenslade M, Shelton J, Hiom S, Richards M (2012) Routes to diagnosis for cancer – determining the patient journey using multiple routine data sets. British Journal of Cancer 107: 1220–1226.)
--AGE (aggregated in 4 categories: <55, 55-64, 65-74, 75+)
--STAGE (stage of the cancer coded as I, II, III, IV, missing) --CANCER_SITE (Cancer sites coded in accordance with ICD 10: C00-C14, C15, C16, C18, C19-C20, C25, C33-C34, C43, C49, C50, C54, C56, C61, C64, C67, C73, C82, C83, C85, C90, C91-C95, D05 and ‘all other ICD-10 codes’

Specific disclosure controls applied:
--Gender omitted from the data specification in the following cancer sites:
• Female only for C50, D05 and C73
• Male only for C49
--Self-reported ethnicity (from the CPES surveys) aggregated into white British / non-white British / not specified.
--Self-reported ethnicity omitted for C49, C64, C73 (replaced as “missing”).

英国国家癌症患者体验调查（CPES）由英国国家卫生服务局委托，并由外部调查提供机构（Quality Health）代为实施。该调查旨在深入了解英格兰地区接受日间治疗或住院治疗的癌症患者所经历的医疗护理。CPES的调查数据已与国家癌症登记和分析服务（英格兰的癌症登记机构）记录的癌症登记记录相连接。Wave 2阶段的CPES调查问卷的个体响应记录，以及完成调查的患者特征均予以记录。

国家癌症患者体验调查的Wave 2仅限于2011年9月1日至2011年11月30日期间出院的癌症患者。

文件中的数据包括：
--PATIENT_PSEUDO_ID（项目特定伪匿名患者ID）
GENDER（编码为男性、女性）
--QUINTILE2010（贫困五分位数[1-5]，描述收入贫困领域，其中1表示最不贫困，5表示最贫困）
--FINAL_ROUTE（诊断途径之一，其中八种诊断途径的分配方法在Elliss-Brookes L, McPhail S, Greenslade M, Shelton J, Hiom S, Richards M (2012) Routes to diagnosis for cancer – determining the patient journey using multiple routine data sets. British Journal of Cancer 107: 1220–1226.一文中进行了描述）
--AGE（年龄分为四个类别：<55岁，55-64岁，65-74岁，75岁以上）
--STAGE（癌症阶段以I、II、III、IV编码，缺失值）
--CANCER_SITE（癌症部位根据ICD 10编码：C00-C14, C15, C16, C18, C19-C20, C25, C33-C34, C43, C49, C50, C54, C56, C61, C64, C67, C73, C82, C83, C85, C90, C91-C95, D05以及‘所有其他ICD-10编码’进行编码）

具体的披露控制措施如下：
--在以下癌症部位的数据规范中省略了性别：
• 仅女性为C50，D05和C73
• 仅男性为C49
--来自CPES调查的自我报告种族（白英/非白英/未指定）进行汇总。
--对于C49，C64，C73省略了自我报告的种族（以“缺失”代替）。