Data from: Comparing knowledge and perceptions of palliative care among neuro-oncology patients, caregivers, and providers to a representative U.S. sample

This IRB-exempt study involved an online anonymous questionnaire, utilizing questions from the HINTS, that could be completed in under 5 minutes during a routine clinic visit. An electronic survey was distributed to PBT patients, caregivers, and medical providers, that included questions regarding PC from the Health Information National Trends Survey (HINTS). To ensure participant privacy, no protected health information from any of the three study groups was collected, and identifiable personal information was not gathered. A validated instrument of 9 questions was used, with the first 6 questions addressing knowledge of PC, and the last 3 questions addressing perceptions about PC. Since this was an IRB-exempt, quality improvement project, we did not create unique identifiers to link patients with their caregiver's responses. Hence, patients, caregivers, and providers were treated as three independent groups in analyses.