Lotgenotencontact bij kankerpatienten 1982-1983

<p>What circumstances determine the need of contacts with fellow-cancer patients what is the meaning of these contacts. Impact of diagnosis of cancer to r's life / influence of r's disease on job, relation between job and well-being / doing volunteer work, motives / problems with domestic work, getting help / changes in social contacts / way how cancer was determined, reaction of r / treatment of cancer, consequences of treatment i.e.: surgery, radiotherapy, chemotherapy / psychological and physical pressure / side effects of treatment / making use of alternative treatments / evaluation of sickness, expectations for future / being informed on disease, sources of information, wishes for ( further ) information, uncertainty / involvement of r's partner: presence with doctor visits, contacts with partner and children/ tensions, changes in relation with partner / mastectomy-patients: reaction of partner on amputation / dietary pattern, smoking habits, use of alcohol / hobbies, activities / mental condition: quality of night's rest, feelings of loneliness, fear, aggression / going about fear and bad feelings / personal contacts with ex-fellow patients, contacts with volunteers ( ex-patients ) in connection with aftercare: how, where and when were contacts made and with whom, giving and receiving support, evaluation of contacts / Hodgkin-patients: participation in discussion group / reasons for having no contacts / written questionnaire: self-confidence / most important goals in life / who is responsible for cancer, how can progress of cancer be influenced. Background variables: basic characteristics/ household characteristics/ characteristics of parental family/household/ occupation/employment/ income/capital assets/ education/ organizational membership</p><p>哪些情境决定了癌症患者与同类病友建立联系的必要性，以及此类联系的意义所在。癌症诊断对受访者生活的影响 / 患者病情对工作的影响、工作与幸福感的关联 / 志愿工作的开展、动机 / 家务劳动相关难题与求助情况 / 社会联系的变化 / 癌症确诊的途径、患者本人的反应 / 癌症治疗及其后果，例如手术、放疗、化疗 / 身心压力 / 治疗副作用 / 替代疗法的使用 / 对疾病的认知、对未来的期许 / 疾病信息获取情况、信息来源、（进一步）信息获取的意愿、认知不确定性 / 伴侣的参与情况：陪同就诊、与伴侣和子女的互动 / 伴侣关系的紧张与变化 / 乳房切除术患者：伴侣对截肢的反应 / 饮食模式、吸烟习惯、饮酒情况 / 业余爱好与日常活动 / 精神状态：睡眠质量、孤独感、恐惧、攻击性情绪 / 应对恐惧与负面情绪的方式 / 与既往病友的私人联系、康复随访阶段与病友（既往患者）志愿者的接触：联系的方式、地点、时机与对象，支持的给予与获得、对联系的评价 / 霍奇金淋巴瘤患者：参与讨论小组的情况 / 未建立此类联系的原因 / 自填问卷：自信心 / 人生最重要的目标 / 癌症的归因、癌症进展的影响因素。背景变量包括：基本特征 / 家庭特征 / 原生家庭特征 / 家庭状况 / 职业/就业情况 / 收入与可支配资产 / 教育水平 / 组织成员身份</p>