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Consent, collaboration and cures: the views of rare disease patients on systems for sharing data and biospecimens

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Figshare2016-01-19 更新2026-04-08 收录
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https://figshare.com/articles/dataset/Consent_collaboration_and_cures_the_views_of_rare_disease_patients_on_systems_for_sharing_data_and_biospecimens/1318777/1
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资源简介:
Qualitative research among rare disease patients and advocates about their views on the international sharing of data and biospecimens for research.
创建时间:
2015-02-26
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