Data_Sheet_1_Adolescents and young adults with oncohematological disease: use of social networks, impact of SARS-COV-2, and psychosocial well-being.docx

ObjectiveAdolescents and young adults (AYA) with oncohematological diseases could have important psychosocial difficulties that could be worsened by the effects of the COVID19 pandemic. At this developmental stage, it is also important to assess the use of social networks (SNs). This study aims to investigate the type of social network use and the consequences of the COVID19 period. These patients are compared with matched healthy peers.MethodsAfter the informant consent signature, the adolescents completed a series of self-report questionnaires on the use of SNs, on communication preferences, on social anxiety and on Covid19 impact through the online platform of LimeSurvey. Most of the adolescents belonged to the 18–20 age group (42.5%), were female (62%) and mainly off therapy (72%).ResultsAdolescents spent more than 2 h/day on Instagram and 1 h and half on Whatsapp, while Tik Tok use was on average 1 h/day, especially used by younger patients (r = −0.33, p = 0.023). Males used Twitch (t45 = −2.06, p = 0.05) and Youtube (t45 = −2.18, p = 0.03) for longer than females. AYA in therapy used more Tik Tok (U = 137.50; p = 0.03), Ask/Tellonym (U = 172.50; p = 0.05) and Twitch (U = 144; p = 0.017) than those off therapy. Healthy AYA showed lower levels of exposure (Z = −4.17; p = 0.00001) and impact (Z = −5.12; p = 0.00001) to Covid19, while the level of social anxiety is comparable and is in the normal range in both groups.DiscussionSome clinical considerations and suggestions could be given based on these empirical results to health professionals in the care of AYA cancer patients.

旨在探讨青少年及年轻成年人（AYA）在患有血液肿瘤疾病的情况下可能面临的重大心理社会困难，这些困难可能因COVID-19大流行的影响而加剧。在此发育阶段，评估社交网络（SNs）的使用情况亦至关重要。本研究旨在调查社交网络的使用类型以及COVID-19期间的影响。将患者与匹配的健康同龄人进行比较。方法：在知情同意签名后，青少年通过LimeSurvey在线平台完成了关于社交网络使用、沟通偏好、社交焦虑以及COVID-19影响的一系列自评问卷。大多数青少年属于18至20岁年龄段（42.5%），女性占比62%，主要处于非治疗状态（72%）。结果：青少年在Instagram上花费超过2小时/天，在WhatsApp上花费1小时30分钟，而TikTok的平均使用时间为1小时/天，尤其受到年轻患者的青睐（r=−0.33，p=0.023）。男性在Twitch（t45=−2.06，p=0.05）和YouTube（t45=−2.18，p=0.03）上的使用时间比女性更长。处于治疗状态下的AYA患者比非治疗状态下的患者更频繁地使用TikTok（U=137.50；p=0.03）、Ask/Tellonym（U=172.50；p=0.05）和Twitch（U=144；p=0.017）。健康同龄人在COVID-19的影响暴露（Z=−4.17；p=0.00001）和影响（Z=−5.12；p=0.00001）方面显示出较低的水平，而两组的社交焦虑水平相当，且均处于正常范围内。讨论：基于这些实证结果，可向照顾AYA癌症患者的医务工作者提供一些临床考虑和建议。