CMyGuideline: Development, validation, and pilot data of a patient-reported instrument for monitoring TKI-related toxicity in real-world CML care

This collection contains the data associated with the development, validation and pilot data collection of a patient-reported outcome measure instrument (PROM) for monitoring tyrosine kinase inhibitor (TKI)-related toxicity in chronic myeloid leukemia patients. The data set consists of transcripts of group focus sessions and individual interviews, captured during the qualitative development and validation phases of the new instrument. It also contains longitudinal pilot data captured with the developed patient-reported instrument through online questionnaires, from 278 patients. All text is in Dutch.