Health Data Research Innovation Gateway

The Health Data Research Innovation Gateway (the ‘Gateway’) provides a common entry point to discover and enquire about access to UK health datasets for research and innovation. It provides detailed information about the datasets, which are held by members of the UK Health Data Research Alliance, such as a description, size of the population, and the legal basis for access. The Gateway includes the ability to search for research projects, publications and health data tools, such as those related to COVID-19. New interactive features provide a community forum for researchers to collaborate and connect and the ability to add research projects. The Innovation Gateway does not hold or store any datasets or patient or health data but rather acts as a portal to allow discovery of datasets and to request access to them for health research. A dataset is a collection of related individual pieces of data but in the case of health data, identifiable information (e.g. name or NHS number) is removed and data is de-identified where possible. When you access the Gateway you will not be able to view or extract the data itself. Instead, you will be able to see information that describes what the different datasets are (e.g. where the dataset has come from, a description of the dataset, the time period and the geographical areas the dataset covers). In order to access the data, you will need to sign in and then follow the access request process. Only once your request has been through the process to ensure your application meets all of the requirements and is approved by the data controller will you be able to access the data. Your access to the data will be provided outside of the Gateway in line with the processes of the data controller - read through our FAQs for more information on the process. The datasets that are discoverable through the Innovation Gateway are from organisations in the NHS, research institutes and charities, which are part of the UK Health Data Research Alliance. You can find out more about its members on the UK Health Data Research Alliance website. The information provided about the datasets has been provided by the relevant data controller and is continually updated.

健康数据研究创新门户（Health Data Research Innovation Gateway，下称“本门户”）为科研与创新领域的使用者提供统一入口，用于检索英国健康数据集并咨询其获取途径。本门户会提供英国健康数据研究联盟（UK Health Data Research Alliance）成员所持有数据集的详细信息，包括数据集简介、人群规模以及访问的法律依据。本门户支持检索科研项目、学术出版物以及健康数据工具，例如与新型冠状病毒肺炎（COVID-19）相关的工具。新增的交互式功能为研究者搭建了协作交流的社区论坛，并支持上传科研项目。本门户不持有、存储任何数据集、患者健康数据，仅作为门户平台，供用户检索健康数据集并提交健康研究相关的数据获取申请。数据集是相关个体数据的集合；针对健康数据而言，系统会尽可能移除可识别信息（例如姓名或NHS号码（NHS number））并完成数据去标识化处理。用户访问本门户时，无法直接查看或提取数据集本身，仅能浏览各数据集的描述信息，例如数据集来源、数据集简介、覆盖的时间范围与地理区域。若要获取数据集，用户需先登录本门户，再按照数据获取流程提交申请。仅当申请通过审核流程、满足所有要求且获得数据管控方批准后，用户方可访问数据集。数据集的访问将通过本门户之外的渠道完成，具体流程遵循数据管控方的相关规定——您可查阅本门户的常见问题解答（FAQs）以了解更多流程细节。本门户可检索的数据集来自英国国民保健署（National Health Service，NHS）、科研机构以及慈善组织，上述机构均为英国健康数据研究联盟的成员。您可访问英国健康数据研究联盟官网，了解其成员的更多信息。本门户所提供的数据集相关信息均由对应数据管控方提交，并会持续更新。

搜集汇总

背景与挑战

背景概述

Health Data Research Innovation Gateway 是一个统一的入口门户，用于发现和申请访问英国的健康数据集，这些数据集来自 NHS、研究机构和慈善组织等联盟成员。它不存储实际数据，而是提供数据集的描述信息，并支持用户搜索研究项目、出版物和工具，同时促进研究人员之间的协作。