Psychometric data for 'A new quality of life questionnaire for use in Duchenne muscular dystrophy: the DMD-QoL'

Research data (DMDQoLPsychometric.csv) collected in an online survey of boys and men with Duchenne muscular dystrophy (DMD) in order to support the psychometric analysis and development of a new quality of life questionnaire in DMD: the DMD-QoL.<br>The research is part of the <i>Producing a preference-based quality of life measure for people with Duchenne muscular dystrophy </i>project and is funded as part of project HERCULES led by Duchenne UK.<br><br>A protocol for the work is available online: Powell et al. (2019), http://dx.doi.org/10.1136/bmjopen-2018-023685<br> All necessary approvals were acquired to use the patient reported outcome measures in this dataset. The research received ethical approval from the UK National Health Service (NHS REC reference: 18/SW/0055). <br><br>An associated data dictionary (dataDictionaryDMDQoLPsychometric.docx) is provided.