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Development of a computer-based tool to obtain a family health history in Vietnam

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Taylor & Francis Group2024-10-29 更新2026-04-16 收录
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https://tandf.figshare.com/articles/dataset/Development_of_a_computer-based_tool_to_obtain_a_family_health_history_in_Vietnam/27323916/1
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资源简介:
<b>Background:</b> Family health history (FHH) is central to human genomic profiling construction; however, there is no protocol for documenting FHH in a pedigree format in Vietnam. <b>Aim:</b> A “Gia Su Suc Khoe” (GSSK) tool was developed to create a user-friendly interface for collecting FHH and offering diseases' risk assessment. <b>Results:</b> A tool was described (https://giasusuckhoe.vn/) with good feedback from genetic counselors and family-medicine doctors. Among 20 surveys, 100% of respondents noted that the report accurately reflected their FHH and were satisfied with the tool's display. About 74% of familial conditions were covered. Overall, all constructive feedback has been adapted into the updated version. <b>Conclusion:</b> Gia Su Suc Khoe has the potential to significantly improve healthcare delivery and outcomes in Vietnam. Family health history (FHH) has been a primordial, non-expensive, and non-invasive risk stratification tool to inform prevention and screening strategies, especially for common genetic conditions. A new program developed in Vietnam namely Gia Su Suc Khoe (GSSK) not only utilizes a pedigree format to capture FHH but also performs risk assessments for various preventable and prevalent genetic disorders. GSSK is a self-administered, patient-centric and computerized program for obtaining Vietnamese FHH (https://giasusuckhoe.vn/), which receives positive feedback from genetic counselors and family-medicine doctors on its effectiveness, precision, and practical implications. GSSK becomes the pioneering program to help obtain FHH in Vietnam, which is believed to address several barriers, ensure high-quality information and leverage it for risk assessment.
提供机构:
Truong, Viet Hoang; Nguyen, Tuyet-Lan Thi; Bui, Minh Binh; Quan, Dieu Chan; Truong, Dinh-Kiet; Nguyen, Hoai-Nghia; Tieu, Linh Ba; Nguyen, Vinh Nhu; Nguyen, Vu Quoc Huy; Lu, Y-Thanh; Ha, Thi Minh Thi; Tran, Huong-Thao Xuan; Tang, Hung-Sang; Nguyen, Quynh-Tho Thi; Le, Toan Thanh; Truong, Hieu Minh; Thi, Thanh-Thuy; Tran, Phu Gia; Nguyen, Quynh Nhat; Nguyen, Nguyen Huu
创建时间:
2024-10-29
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