Economic and social costs of dementia to families and the community, 1991

This study was undertaken to assess the financial, emotional and health costs to caregivers of patients suffering from dementia. Caregivers of both institutionalised and non-institutionalised patients were interviewed. Caregivers provided information on the official diagnosis of the patient and how the illness affected their home and work duties; the use of residential respite, medical and community services; the costs involved and helpfulness of these services; other financial costs involved in looking after the patient; the effect on the emotional state and physical health of the caregiver, and the reasons given concerning institutional placement. Background variables were collected on both the patient and the caregiver. These included age, sex, marital status, highest level of education, financial status, current living arrangements, country of birth, first language spoken at home, the relationship between the patient and primary caregiver, and the length of time the caregiver has been looking after the patient.
00964a. Phase 1 community questionnaire
00964b. Phase 1 institution questionnaire
00964c Phase 2 deceased questionnaire
00964d Phase 3 community questionnaire
00964e Phase 3 institution questionnaire