From Isolation to Integration in Global Pediatric Oncology Rehabilitation: Quantitative Data of the Project

These are the two quantitative datasets of the project "From Isolation to Integration in Global Pediatric Oncology Rehabilitation. A project by the Rehabilitation & Physical Medicine Special Interest Group (SIOP RPM-SIG)."

The project was a mini-Delphi study with the aim to provide an overview of the current pediatric oncology rehabilitation strategies, to define pediatric oncology rehabilitation and its providers, to define short- and long-term goals, and to identify and prioritize research gaps in pediatric oncology rehabilitation globally.

Ethics: This project received Human Subjects Review Clearance from the Human Subjects Committee at the University of Lucerne, Switzerland on April 25, 2024 (IRB #2024-005).

Methods: We first sent out an invitation to participate in "Survey 1" (snowballing approach; April to June 2024). Second, we had focus group discussions, based on the results of "Survey 1" at an in-person meeting. Finally, we sent out an invitation to participate in "Survey 2" (July to September 2024) to participants of "Survey 1" and the focus group discussions. "Survey 2" was based on the results of "Survey 1" and the focus group discussions.

The datasets of both "Survey 1" and "Survey 2", and detailed data dictionaries are available.