首页/数据集/Anthropometric characteristics of the boys with Duchenne muscular dystrophy.

Anthropometric characteristics of the boys with Duchenne muscular dystrophy.

NIAID Data Ecosystem2026-03-12 收录

数据链接：

https://figshare.com/articles/dataset/Anthropometric_characteristics_of_the_boys_with_Duchenne_muscular_dystrophy_/13266763 数据链接链接失效反馈

官方服务：

资源简介：

Anthropometric characteristics of the boys with Duchenne muscular dystrophy.

应用场景：

创建时间：

2020-11-20

罕见病患者登记

神经肌肉疾病

The Myotubular and Centronuclear Myopathy Patient Registry (‘MTM and CNM Registry’) is an international database specific to these conditions, operated by Newcastle University in the UK as part of the

DataCite Commons2021-06-17 更新140

Characteristics of Groups According to Time of Confirmed Diagnosis Relative to Initiation of MV * .

儿科机械通气管理

神经肌肉疾病

Data are expressed as median (range). * The MV directly associated with the start of HMV † Total cumulative days of pre-HMV admissions divided by age (days) at the start of HMV § Total cumulative days

NIAID Data Ecosystem70

Table_1_Delayed Respiratory Insufficiency and Extramuscular Abnormalities in Selenoprotein N-Related Myopathies.XLSX

神经肌肉疾病

遗传性肌病研究

Background: Selenoprotein N-related myopathies (SEPN1-RMs) are a subset of congenital myopathies caused by mutations of Selenoprotein N gene (SELENON or SEPN1). Clinical phenotype is considered as hig

NIAID Data Ecosystem30

Supplementary Material for: Home Use of Mechanical Insufflation/Exsufflation in Adult Patients in Western Switzerland

家庭呼吸支持治疗

神经肌肉疾病

Background: Mechanical insufflation/exsufflation (MI-E) devices are often prescribed to patients with inefficient cough and recurrent infections, but their use in the home setting is not well characte

NIAID Data Ecosystem90

Supplementary materials for a protocol for quantifying patient preferences in neuromuscular disorders

患者偏好量化

神经肌肉疾病

The extended data includes: Team members listed, participant information sheets, consent forms and a list of attributes to be included in each Treatment Preference Methods.

NIAID Data Ecosystem50

Anthropometric characteristics of the boys with Duchenne muscular dystrophy.

资源简介：

相关数据集