Dataset Health Committees and disability

Community participation and the right to health for people with disability: Health Committees’ understanding of and role in ensuring health care for persons with disability. 
ABSTRACT
INTRODUCTION: 
People with disabilities encounter major barriers that prevent them from realising their right to health in South Africa. Health committees are legislated structures for community participation in health at a local level. This study investigated how health committee members understand and practise their role in community participation and how this advances the right to health for persons with disability. 
METHODS: A qualitative study was conducted with three health committees in the Cape Town Metropole in the Western Cape province of South Africa purposively selected for the study. Three facility managers and eight health committee members took part in focus group discussions and semi-structured interviews, supplemented by participant observations of committee meetings. Additionally, semi-structured interviews were conducted with two disability activists. These methods were used to gain a rich understanding of health committees’ roles and practise in relation to persons with disability. Thematic content analysis was used to analyse the data. 
RESULTS: The main research findings were: (i) health committees did not prioritise disability on their respective agendas; (ii) persons with disability   were not adequately represented on health committees; (iii) health committees exhibited poor understanding of disability barriers relating to health; (iv) lack of egalitarian values led to persons with disability  not trusting the health committee, and distrust amongst health committee members; lastly (v) health committees augment health facility operations instead of fulfilling their governance and oversight function. These factors may have contributed to health committees not helping to advance the right to health for persons with disability.
CONCLUSION: 
Health committees should include mandated representation of persons with disability, whilst addressing marginalisation directed toward them  persons with disability on committees. Training of health committees, as well as networking with organisations of persons with disability, could help improve their limited understanding of disability. Health committees should consider addressing disability as a human rights issue, which critically involves community mobilisation, raising awareness around issues of disability and promoting agency amongst persons with disability to claim their rights.
The dataset consists of focus groups, interviews and observations with three health committees as well as a document review. The data focus on understanding how health committees represent disability issues in health services.
The dataset is available on reasonable request.

残疾人士社区参与与健康权：健康委员会对保障残疾人医疗服务的理解与角色。
摘要
引言：残疾人士在南非面临诸多障碍，阻碍其实现健康权的实现。健康委员会是地方层面社区参与健康的法定结构。本研究旨在探讨健康委员会成员如何理解和实践其在社区参与中的角色，以及这种参与如何推进残疾人士的健康权。
方法：本研究在南非西开普省开普敦大都会的三个健康委员会中进行了定性研究。三名设施经理和八名健康委员会成员参与了焦点小组讨论和半结构化访谈，并辅以委员会会议的参与观察。此外，还对两名残疾人士活动家进行了半结构化访谈。这些方法被用于深入理解健康委员会在残疾人士方面的角色和实践。数据采用主题内容分析法进行解析。
结果：主要研究发现在以下方面：（i）健康委员会在其各自议程中未将残疾问题优先考虑；（ii）残疾人士在健康委员会中的代表性不足；（iii）健康委员会对与医疗保健相关的残疾障碍理解不足；（iv）缺乏平等价值观导致残疾人士不信任健康委员会，以及健康委员会成员之间的不信任；（v）健康委员会增强医疗机构运营而非履行其治理和监督职能。这些因素可能导致了健康委员会未能帮助推进残疾人士的健康权。
结论：健康委员会应包括残疾人士的法定代表性，同时解决针对残疾人士的边缘化问题。对健康委员会的培训以及与残疾人士组织的网络化合作有助于改善其对残疾的有限理解。健康委员会应考虑将残疾视为人权问题，这涉及至关重要的社区动员，提高对残疾问题的认识，并促进残疾人士主张其权利。
数据集包括对三个健康委员会的焦点小组、访谈和观察，以及文件审查。数据侧重于理解健康委员会如何在医疗服务中代表残疾问题。
数据集可根据合理要求提供。