Table 1_Caregiver and clinician perceptions of barriers to cerebral palsy healthcare—mixed methods findings and systems change recommendations.docx

IntroductionThe present paper is the second in a series of exploration phase efforts toward building and sustaining patient-centered agendas for research and clinical care in CP.
MethodsFocus group and surveys were used to assess perspectives of caregivers of young children with CP (N = 19) and clinicians (N = 102) regarding CP-specific medical care priorities and barriers and facilitators to high quality CP-focused care in Georgia, US.
ResultsQualitative and quantitative analysis reveal areas of areas of synergy and discrepancy between the two stakeholder groups.
DiscussionTogether stakeholder responses converge on the notion that (1) empowering caregivers to better utilize the resources that do exist and (2) building provider capacity and confidence in efficient delivery of high-quality CP care is critical to drive system changes for improving access and outcomes across the lifespan. Proposed action items for systems change arise from the convergence of caregiver and clinician responses.