Clinical and Administrative Data on Substance and HIV Risk Exposure for Foster Youth

The purpose of this project is to identify differences in healthcare access and use and predictors of health behaviors for youth in foster care compared to demographically similar youth never in foster care, using data elements that are commonly available in the electronic health record and child welfare record, with the long-term goal of supporting the delivery of prevention and intervention efforts to promote health equity for young people in foster care. Summary data is provided to promote transparency and open data sharing. To encourage collaboration and additional analysis, beyond summary and descriptive data, to answer questions about healthcare delivery and addressing health needs that will promote evidence-based practice and healthcare delivery decisions, these data are made available through a data use agreement with the PI, Sarah Beal ([e-mail]).本项目旨在对比寄养青少年与人口统计学特征匹配的非寄养青少年在医疗服务可及性、使用情况及健康行为预测因素上的差异，所用数据元素均取自电子健康档案（electronic health record）与儿童福利档案（child welfare record）中的通用字段。本项目的长期目标是支持开展预防与干预工作，以推动寄养青少年群体的健康公平。本数据集提供汇总数据，以提升研究透明度并促进开放数据共享。为鼓励学界开展协作与拓展分析（不限于仅进行汇总与描述性数据研究），以解答医疗服务供给、健康需求解决相关问题，进而推动循证实践与医疗服务决策制定，本数据集需通过与项目负责人（Principal Investigator，PI）莎拉·比尔（Sarah Beal，[e-mail]）签订数据使用协议后方可获取。

搜集汇总

背景与挑战

背景概述

该数据集通过整合儿童福利行政记录与电子健康记录，旨在比较寄养与非寄养青少年在医疗保健获取、使用及健康风险行为方面的差异，以支持促进健康公平的干预措施。数据集包含2012至2017年间5574名青少年的去标识化信息，涵盖人口统计、医疗接触、心理健康诊断等维度，并通过数据使用协议向研究人员开放。