Designing for Participatory Data Governance

This research explores approaches to involving research participants in decisions about their data, its management and governance. Through exploring two different research contexts, one considering small-scale participant collected data and the other large-scale researcher collected data, it provides insights that illustrate how communities can be more involved and be given more control over their data. It presents a participatory data governance framework that can assist future research in engaging participants in data decisions throughout the research process.