PROMIS de-identified dataset

Figshare2025-07-28 更新2026-04-28 收录

患者报告结局测量

非心脏手术预后研究

数据链接：

https://figshare.com/articles/dataset/PROMIS_de-identified_dataset/29636924 数据链接链接失效反馈

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资源简介：

Research investigating the association of patient-reported PROMIS physical function scores and outcomes in noncardiac surgery.

创建时间：

2025-07-28

Epileptic Encephalopathy self-reported surveys

癫痫性脑病基因检测

患者报告结局测量

Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.

NIAID Data Ecosystem40

Validation of the Lymphoedema Quality of Life Questionnaire (LYMQOL) in Swedish cancer patients

患者报告结局测量

淋巴水肿生活质量评估

Background: The aim of this study was to validate a translated Swedish version of the lymphoedema-specific quality of life questionnaire (LYMQOL) in a cohort of Swedish cancer patients with sec

Taylor & Francis Group2020-05-07 更新20

A summertime pause in immunoglobulin replacement therapy: A prospective real-world analysis.

免疫缺陷治疗管理

患者报告结局测量

Appendix A. Self-administered questionnaire on infectious events. Appendix B. Self-administered quality of life (QOL) questionnaire for patients who took a summertime pause (SP).

Figshare2021-11-08 更新20

Visual analogue scale distribution at baseline and follow-up (averaged over 7 days).

疼痛临床评估

患者报告结局测量

* The minimum baseline score is a little lower than 30 mm at screening, which took place a week before the commencement of the study.

NIAID Data Ecosystem30

Pain Assessment Screening Tool and Outcomes Registry (PASTOR)

患者报告结局测量

生理功能评估

This dataset from the Pain Assessment Screening Tool and Outcomes Registry (PASTOR) comprises 1,600 adults recruited into four mutually exclusive cohorts from an online panel company (www.op4g.com). T

Harvard Dataverse2024-10-11 更新20

PROMIS de-identified dataset

资源简介：

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