National Academy of Sciences-National Research Council Twin Registry (NAS-NRC Twin Registry), 1958-2013 [RESTRICTED]

In 1958, the Medical Follow-up Agency (MFUA) of the Institute of Medicine began a project to identify twins who had jointly entered military service during World War II. In the end, MFUA identified nearly 16,000 White male twin pairs born 1917-1927 in which both members had served in the military. These twins comprise the National Academy of Sciences-National Research Council World War II Twin Registry (NAS-NRC Twin Registry). This collection represents data from service records, a mailed questionnaire assessing zygosity, and repeating health surveys, including information on education, employment history, and earnings. There are nine datasets associated with this restricted-use collection: 1) The Administrative dataset includes demographic, zygosity, service history, mortality, and questionnaire participation data; 2) The Service and Other Records dataset contains information collected from service records, physical exam data, cognitive test data, and dental records; 3) The Questionnaire 2 dataset consists of data collected in the first mailed questionnaire sent in 1965 about pain, illnesses, smoking habits, alcohol consumption, and employment; 4) The Questionnaire 3 dataset includes data from the baseline epidemiological questionnaire sent in 1974 about number and sex of children, religious attendance, education, income, and occupation; 5) Questionnaire 7, mailed in 1985, contains similar topics as in Questionnaire 2, and includes data about health conditions such as diabetes, as well as feelings about work and retirement; 6) Questionnaire 8 was mailed in 1998 was the third epidemiologic questionnaire. This dataset is comprised of overlapping topics with Q2 and Q7, and has additional data about feelings, prescription medications, activity levels, the Geriatric Depression Scale, and parental death status; 7) The NEO Personality Inventory dataset includes responses to the NEO Five-Factor Personality Inventory mailed in 2005-2006; 8) The Service and Death Records dataset (VDE access only) contains information about date and place of birth, state at induction, disciplinary measures during service, decorations received during service, indicator for those known to have been POWs, reason for separation from the military, age at death if died over age 90, and cause of death. Some of this information was obtained from the re-read of service records and is thus available only for a subset of 6357 men; 9) Diagnoses dataset (VDE access only) contains data about medical conditions diagnosed between 1935 and 1985 that were abstracted from a variety of medical records over the course of the study. The diagnoses were coded using the International Classification of Disease system (WHO, 2015).

1958年，医学研究所（Institute of Medicine）下属的医学随访机构（Medical Follow-up Agency，简称MFUA）启动了一项旨在识别在第二次世界大战期间共同服役的双胞胎的项目。最终，MFUA成功识别了近乎16,000对出生于1917至1927年间的白人男性双胞胎，其中双胞胎成员均曾服役于军队。这些双胞胎构成了美国国家科学院-国家研究委员会第二次世界大战双胞胎登记库（National Academy of Sciences-National Research Council World War II Twin Registry，简称NAS-NRC Twin Registry）。该集合汇集了来自服役记录、评估同卵性的邮寄问卷以及反复进行的健康调查的数据，其中包括教育、就业历史和收入等信息。与这一受限使用集合相关联的共有九个数据集：1）行政数据集包含人口统计学、同卵性、服役历史、死亡率和问卷参与数据；2）服役及其他记录数据集包含从服役记录、体检数据、认知测试数据和牙科记录中收集的信息；3）问卷2数据集由1965年首次邮寄的问卷收集的数据组成，涉及疼痛、疾病、吸烟习惯、酒精消耗和就业情况；4）问卷3数据集包括1974年邮寄的基线流行病学问卷中的数据，涉及子女数量和性别、宗教参与、教育、收入和职业；5）1985年邮寄的问卷7包含与问卷2类似的主题，并包括有关糖尿病等健康状况以及工作和对退休的感受的数据；6）1998年邮寄的问卷8是第三次流行病学问卷。该数据集包含与Q2和Q7重叠的主题，并增加了关于感受、处方药物、活动水平、老年抑郁症量表以及父母死亡状态的数据；7）NEO人格问卷数据集包括2005-2006年邮寄的NEO五因素人格问卷的回应；8）服役及死亡记录数据集（仅限VDE访问）包含有关出生日期和地点、征兵时的状态、服役期间的纪律措施、服役期间获得的勋章、已知被俘者的指标、从军分离的原因、若死亡时年龄超过90岁则包含死亡年龄以及死亡原因的信息。其中一些信息是从重新审阅服役记录中获得的，因此仅对6357名男性的子集可用；9）诊断数据集（仅限VDE访问）包含1935年至1985年间在研究过程中从各种医疗记录中摘录的医疗状况诊断数据。诊断使用国际疾病分类系统（WHO，2015年）进行编码。