Infant Health and Development Program, Phases I-III Records, 1984-2002
收藏DataONE2017-08-22 更新2024-06-26 收录
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This dataset represents a group of paper records (a \"series\") within the Marie C. McCormick papers, 1956-2016 (inclusive), 1968-2009 (bulk), which can be accessed on-site at the Center for the History of Medicine at the Francis A. Countway Library of Medicine in Boston, Massachusetts. The series consists of administrative and regulatory records generated and compiled by Marie C. McCormick as a product of her research on phases I through III of the Infant Health and Development Program (IHDP). The Infant Health and Development Program consisted of four phases, and was concerned with the short- and long-term outcomes of low birthweight and high-risk pregnancies. For records from the fourth phase, for which McCormick served as Principal Investigator, please see the “Infant Health and Development Program, Phase IV Paper Records, 1990-2009” dataset. Administrative records include reports, grant application records, and administrative correspondence. Regulatory records include survey instruments, methodologies, protocols, codebooks, and health examination forms. Frequent topics include: engagement and motivation in school; behavior and mental health; cognitive and linguistic ability; health status; mothers’ supervisory attitudes and strategies; mothers’ aspirations for their children; mothers’ coping and mental health; between lighter and heavier low-birthweight children; and between more and less affluent families. Series also includes: occasional raw data patient information; manuscript drafts and related correspondence; and three 3.5 inch floppy disks and 1 zip disk, containing SAS dataset files. More IHDP records may be found in the “Infant Health and Development Program, Phase IV Paper Records, 1990-2009” and “Infant Health and Development Program, Phase IV Electronic Records, 2000-2016” datasets. Data and associated records are accessible onsite at the Center for the History of Medicine per the conditions governing access described below. Conditions Governing Access to Original Collection Materials: The series represented by this dataset includes longitudinal patient information that is restricted for 80 years from the most recently dated records in the “Infant Health and Development Program, Phase IV Paper Records, 1990-2009” series, personnel information that is restricted for 80 years from the date of record creation, and Harvard University records that are restricted for 50 years from the date of record creation. Access to electronic records is also premised on the availability of a computer station, requisite software, and/or the ability of Public Services staff to review and/or print out records of interest in advance of an on-site visit. Researchers should contact Public Services for more information. The Marie C. McCormick papers were processed with grant funding from the Andrew W. Mellon Foundation, as awarded and administered by the Council on Library and Information Resources (CLIR) in 2016. View the Marie C. McCormick Papers finding aid for a full collection inventory of both paper and digital records, and for more information about accessing and using the collection.
本数据集涵盖1956年至2016年(全覆盖)、1968年至2009年(主要馆藏时段)玛丽·C·麦考密克档案集内的一组档案记录(即「系列档案」),可至马萨诸塞州波士顿弗朗西斯·A·卡恩韦医学图书馆医学史中心现场查阅。
该系列档案由玛丽·C·麦考密克在开展婴儿健康与发展项目(Infant Health and Development Program, IHDP)第一至第三阶段研究期间生成并整理的行政与监管类记录组成。婴儿健康与发展项目共分为四个阶段,聚焦低出生体重儿与高危妊娠的短期及长期结局。如需查阅麦考密克担任首席研究员的第四阶段相关记录,请参阅「婴儿健康与发展项目第四阶段纸质档案记录,1990-2009」数据集。
行政记录包括报告、资助申请材料与行政往来信函。监管记录包括调查工具、研究方法、实验方案、编码手册与健康检查表。常见研究主题涵盖:在校参与度与学习动机、行为与心理健康、认知与语言能力、健康状况、母亲的监护态度与抚育策略、母亲对子女的期望、母亲的应对方式与心理健康、低出生体重轻重患儿间的差异,以及不同经济水平家庭间的差异。
本系列档案还包含:零星的原始患者数据资料、手稿草稿及相关往来信函,以及3张3.5英寸软盘与1张Zip磁盘(内含SAS数据集文件)。更多婴儿健康与发展项目档案可在「婴儿健康与发展项目第四阶段纸质档案记录,1990-2009」与「婴儿健康与发展项目第四阶段电子档案记录,2000-2016」数据集中获取。
本数据集所涉系列档案的原始馆藏及关联资料仅可在医学史中心现场查阅,查阅需遵循下述规定:纵向患者信息需自「婴儿健康与发展项目第四阶段纸质档案记录,1990-2009」系列中最新记录的日期起保密80年;人事信息需自记录生成之日起保密80年;哈佛大学相关记录需自记录生成之日起保密50年。电子档案的查阅还需满足以下前提:配备可用的计算机工作站与必要软件,或公共服务部门工作人员可在来访者现场查阅前完成相关记录的审核与打印。研究人员可联系公共服务部门获取更多详情。
玛丽·C·麦考密克档案集的整理工作由安德鲁·W·梅隆基金会提供资助,并于2016年由图书馆与信息资源委员会(Council on Library and Information Resources, CLIR)负责执行与管理。如需查阅完整的纸质与电子档案馆藏清单,以及更多关于该档案集的获取与使用信息,请参阅《玛丽·C·麦考密克档案集馆藏检索指南》。
创建时间:
2023-11-22
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以上内容由遇见数据集搜集并总结生成



