2019 UK Parkinson's Audit - Patient Reported Experience Measure (PREM)

The UK Parkinson’s Audit assesses care provided to people with Parkinson's by a range of clinical specialties against evidence-based guidelines. The audit is open to services across the UK - secondary care (non-acute) and community services.

The audit includes a Patient Reported Experience Measure (PREM) which takes the form of a patient questionnaire which can be completed by any individual who attends one of the services (elderly care, neurology, physiotherapy, occupational therapy and speech and language therapy) participating in the audit. The questionnaire can be completed by the person with Parkinson’s or by a carer on their behalf. No patient identifiers are collected.

The PREM questions cover the individual’s experiences of the whole of their Parkinson’s service, not only the specialty which has handed them the questionnaire to complete.

The questionnaire is completed and sealed by the participant - the service does not have sight of the completed questionnaire. Each service must return at least ten questionnaires in order for their PREM data to be included in the analysis.

The 2019 audit received 8,247 completed PREM questionnaires from 451 (77.7%) of the participating services.

The data is available by UK Parkinson’s Excellence Network region. The UK Parkinson's Excellence Network is a network of health and social care professionals working to improve Parkinson's services administered with support from Parkinson’s UK. Professionals can join the Network to access resources, increase their knowledge of Parkinson's and collaborate with people affected by Parkinson's to transform health and care services.

The audit is the recognised quality improvement tool for the Excellence Network, providing an important baseline against which progress can be measured, informing national, regional and local service improvement priorities and plans to achieve better services for people living with the condition.

The regions are:

England:
Cheshire and Merseyside
East of England
East Midlands
Greater Manchester, Lancashire and South Cumbria
London
North East and Cumbria
Peninsula
South East Coast
South West
Thames Valley
Wessex
West Midlands
Yorkshire and Humber

Scotland:
North Scotland
South and East Scotland
West Scotland

Northern Ireland:
Northern Ireland

Wales:
North and Mid Wales
South Wales

Other:
Guernsey
Isle of Man
Republic of Ireland

Information about the regions can be found here: https://www.parkinsons.org.uk/professionals/local-parkinsons-excellence-network-groups